Guest Episode
June 30, 2022
Episode 71:
What is Neuro-Diversity
Listen or watch on your favorite platforms
Danielle Sullivan is a neurodiversity life coach who works mainly with neurodivergent autistic and ADHD adults.
She uses solution-focused, positive psychology, and transformational coaching methods depending on what her client needs.
Today, we will discuss how neurodiverse life coaching can help people move forward and succeed.
Well, hello Danielle. Thank you so much for joining me on
true Hope cast welcome to the show. What's going
well for you? How are you? Hello. Thank you so much for having
me.
Today we have a really nice day. I've it's
morning for me and it's sunny and it's nice. So
I'm looking forward to getting outside today. And yeah, just
kind of having a good day.
I'm glad to hear it and we've just talking about your beautiful words behind
you inhale courage and exhale fair if
you've got what's the story behind that?
Oh, thank you. It's really just to help remind me
because I am somebody who gets overwhelmed and I am somebody who
gets anxious and I think the first thing you drop
sometimes when you're in that state of mind is freezing. Breathing is
one of the most basic helpful things you can do. So just
the the reminder to keep breathing and it's
gonna it's gonna be okay just get through it. So yeah. Yeah,
I think when we when we put some conscious thought
into our breathing we certainly think about inhaling and
exhaling but not not quite putting it worth of
word to it like courage or fair or really like that that's adding a
bit more I think a bit more to it. Yeah, I
think you know
Not to get too into it, but you know
breathing in engages that part of your your brain
that part of your nervous system. That is the calming part, especially if
your belly breathing, right and so remembering
Kind of adding the courage piece to it for me reminds me
that I have control to some degree. We don't
have control over our lives, but I have control over how I feel in most cases
and I have control over what trajectory what choices I make and so
choosing to engage my nervous system
to my benefit and choosing to calm down and then
to let go of the fear and make a
decision based on connection right and and
collaborative intent instead of being scared
that something's not gonna work really helps me to focus
and grow so it's one of my go-to's. Yeah. Wonderful. Well
appreciate you explaining that that's right. It's really
good advice to kick these kick things off with but as an
introduction, can you just let us know who you are and
what it is that you do sure thing. So, my name is Danielle
Sullivan. I am the host of the neurodiverging podcast. I'm an
autistic coach a neurodiversity coach. I
work with neurodivergent individuals mostly adults
on all sorts of things social skills
kind of life skill.
Like learning how to be independent emotional intelligence
and Regulation and parenting so
I kind of stick my
fingers in many little pots and I really
enjoy it. It's a it's a really good job, so
Cool. Well, what are you tell what is neurode diversity? What
is neurodivergence? I think I think a
lot of people have heard of let's say neuroplasticity or
you know neural Linguistics, you know, we we have
a lot of terminologies within the Science World
and the medical community and within different practitioners as
well. So can you break that that word down for us? And you know, what does
that mean? Yeah. So I think neurodiversity is
also sort of a buzzword now and it's sometimes
used correctly and sometimes not but at
the root it's just this idea neuro meaning, you
know brain having to do with the brain and the nervous system that there
is a diversity in humans among how our brains and
our nervous systems work and that there's not one way for
brains to be right. There's no right way
to there's no correct style of thinking
or speaking or doing but we
have lots of different brains. And so when I say neuro diversity,
I'm referring to the range that's present.
human beings and specifically you
also hear it kind of related to people who are
autistic like me people with ADHD people who
have had some kind of traumatic brain injury like a concussion or
a stroke people who
are dyslexic were dyspractic or have other
sort of what's usually termed learning disabilities people with
Down Syndrome people with there's
like there's a huge I couldn't name everybody, you know,
people are schizophrenic people who are bipolar and there's many many
more people who are neurodivergent and when
we
Kind of group those folks together. We talk about the neurodivergence
of the population that there are many different kinds of
thinking Styles and brains and then we have people who are the sort
of group.
They may or may not be the majority actually, but
they have them the most power in our society are the neurotypical people
are the people with kind of the brains that are most supported
in our society that the expected brain say,
so yeah, there's just that's kind
of what I work with and so a lot of neurodivergent people
are held up to what we call neurotypical standards
you're expected to act away or behave away or think
away or communicate away that is not really part of
part of how how we naturally do things. And so we're
many of us are pushed into more neurotypical Styles
in a way that can be harmful in the long term. So when
I work with neurodivergent people part of
when I'm doing is saying well, you know, what is you holding
yourself to a standard that is not really reasonable for you as a neurodivergent
individual and what parts are things that we can
actually scale build that are just a gap and skills that maybe we
want to bridge a little bit. So yeah, is
there is there a place where you would learn to
become a newer of Divergent practition?
Is this something that's kind of new or there's schools out
there is being is being taught to people.
So I think that there is more awareness of neurodiversity in
coaching programs in therapy kind of
training programs, but it's still there's not
great resources yet. And that's part of why I started my
podcast is I was identified pretty
late in life in my 30s after my young son was
identified and there are many many other parents particularly
women who tend to present autistic
differently than men do not always but often
and a lot of us are missed and late diagnosed.
And so there's this whole group
of people out there. Excuse me who have had to
Learn about ourselves relatively late and
so many of us have done a lot of kind of individual independent
work on, you know doing research
reading and there are some therapists out
there who have done that work and some coaches out there who've done
that work, but it's not really institutionalized yet.
I guess that's the best way to say it. There are some great organizations out
there who are doing a lot of research and putting out a lot of white papers
and trying to get data out there to practitioners who want
to become more nerd diversity friendly is the terminology we use
or neurodiversity inclusive right who want to work with
folks with different brains and be respectful and and
informed about it, but there's
There's not many good programs. I know
that.
AA and E which is the autism Asperger's Network,
which is an autistic-led organization
has just started a coaching program that's based in
kind of autism studies. I know
a couple of Occupational Therapy programs in United States
graduate programs have a
kind of autism or neurodiversity lens that they
are starting to promote.
And I'm sure you know there I'm sure there are other individual folks.
There are lots of people who do sort of neurodiversity training
under the kind of umbrella of diversity equity
and inclusion training the Dei training who have a neurodiversity
focus in there, but I think a lot
of us are really just sort of pulling together the resources that
we find more helpful in trying to give them to other people and pass
it down that way hopefully in the next 10 years. We'll have a lot more
sort of formal programs and training available for folks.
But yeah, please do us it's still
pretty new. Sorry. Yeah, of course. I just wanted
Are there any thoughts that you have in why maybe
it's being it's being slow to develop
into establish. As you say you're having to pull from
your own resources. There aren't
a lot of
organizations
there that are creating these kind of programs themselves. So it sounds like
it's it's slow to get momentum is
is this because there's like a lack of understand still a lack
of understanding when it comes to autism and the
the other range of conditions that
are out there, you know, you mentioned so many of them so
many of them at the beginning and that's obviously where the birth of neurodiversity comes
from.
So and I can totally understand why it might be difficult to
create a training program. I mean to be
easy to create a training program for let's say an acupuncturist or
a nutritionist, you know, like it's quite specific. We've
got a lot of we understand so much
more about those those things, but maybe we're
not
developing these
programs all this
or this way of teaching because there's a
lack of understanding and you know, not a lot of people want to
dive into something where it's kind of, you know,
misunderstood perhaps or there's not and there's not
so much information to pull from to create something that's really
challenging.
So I'd certainly have sympathy for that. But what
do you think in regards to how it's
gone so far?
As many places. I'm I'm basing the United States and I work
with people worldwide, but the United States has sort of where my focus is and
I work mostly with autistic ADHD people. So,
you know, I don't want to try to speak for everybody who's never
Divergent because there's it's huge number of
the population in terms of autism. I can
say that
In the United States until very recently
there wasn't a very good understanding of how autism
of the the spectrum of autism in
Spectrum doesn't mean that there's people who kind of work
better on one end and work worse than the other end. But rather that we have
lots of different traits that comprise the autistic
profile and not all of us have all of those traits.
So there's mixes of different traits, right? You have
people who are speaking people who are not speaking people who can
have a family and people who are less independent and
need more support with day-to-day tasks.
You know people I'm trying to like think of
common so I can for example have a
family be a parent mostly.
Managed by you know, I manage my business I can mostly do
day-to-day tasks. But I also need support with many things that
are sort of hidden behind and for a long time people like me
weren't
kind of
What's the word we weren't put under the autism spectrum.
We were an understood to be autistic instead. You
had people who were needed more support
day to day who were thought to be autistic and many of them were put
into kind of institutionalized for
a very very long time. And so,
you know, I think one of the big sort of autistic rights
leaders has been
Temple Grandin just in the idea that she's somebody who she's written
many books and she's in her. I
want to say 60 to 70s now and she is somebody who
had high support needs but was not institutionalized who had a parent
who happened to support her highly and and help
her a lot and made it through school and graduate school and has become a
leader in her industry and people like Temple were mostly
institutionalized, you know, 50 40
30 years ago. And so you had
this big kind of gap between people like me and
people who need more support and I do need more support
so I don't mean to put myself way over here, but sort of in the middle
and I think neurotypical people
or people who weren't working with autistic people every
day just weren't aware of how many of us there were because we were
literally segregated and separated out and those
of us like me were just sort of put under the Oddball category or
a little off or a little weird right and you
know many people like us we were just not pathologized into
autism the way we are now so that's one
reason is I think there was just a totally different understanding of
what autism was and how it worked and who who counted as autistic
in the past few decades
and then the second thing is that for a
long time and this is true in many cases with a minority
group we had
Trading programs or support programs or special
education programs that were led by neurotypical people right who are
many of them doing the absolute best they could and really trying
to improve our quality of life. But also we're coming at
it from this perspective that neurotypical is the way we want to be and so
we should make autistic people more neurotypical and that
doesn't work. We have lots of research that that is like
highly traumatic and causes a lot
of kind of Psych issues for for autistic people. So it's
not the way we want to approach it but it is the way that you know,
it was handled for a very
long time and to some degree is still handled, you know,
many of the folks who go into special education, which is
a term. I don't love but is the sort of umbrella term for, you
know supporting non-neurotypical people.
Are our neurotypical and they mean well, but they're also coming
from this lens of we can fix this autistic child to not
fidget to not spend to not
you know stem to not
what else do we do? I don't know repeat things right
all those sort of stereotypical autistic traits and
and we do those things for a reason like they're not just so we're different
they they support us in a certain way and so
until very recently. I think that hasn't been well understood and
it's starting like there are a lot of more autistic-led organizations now
who are doing the advocacy work and really trying to kind of
get the word out that there are ways to support autistics being
autistic and still integrate us into
society and have everyone try to be happy with that integration, but
it's definitely a work in progress. So I hope
that was a helpful answer let me know absolutely and
I I not really had the thought process that
having somebody neurotypical have
all the old all the best intentions to
you know support and
Create something to support these individuals, but if
you don't have the actual internal experience.
and trying to
create something to get get the crate neuro
and it's very difficult to explain a
lot of neuros going on it is yeah, but to
try and get it from the trying to
Target it from the lens that you've got neurotypical individuals
creating these programs for these neurodiversion individuals.
And trying to create the trying
to get them to be neurotypical. That doesn't that doesn't
really when you express it. So simply like that it really that
wouldn't really make sense because you know, we're also different I was
my next question was about you know, you specialize in an
autistic and ADHD adults, but do
you think anyone can kind of benefit from the therapy that
goes on with neurodivergency? Because I think I think
everyone's brain is wildly different and you
know, we say we say neurotypical but there
are a lot of individuals that you know can certainly benefit
from many different types of therapy to you
know, support brain health and to support function and to
do all of these things. So do you think anyone can
benefit from the the types of therapies that
that go on within the neurodivergent?
Realm sure so I'll just
say that I'm a coach and not a therapist so I can answer generally but
don't take this as like therapist advice because it's not but
personally from my experience as an
autistic person and also with my children who are neurodivergent as
well. I have an autistic and an ADHD child each. I have
two children one of each and
the therapies that we've most engaged in are sort of
the traditional talk therapy, which can be very helpful in digging out
kind of cognitive distortions many autistic
people have dealt with significant trauma just
from trying to live in a world that's not
really supportive of us and build for us. So those
therapies can be really helpful and I do recommend them to
clients all the time because as a coach I work with practical kind of
on the ground things, but if somebody is having, you
know a much bigger kind of emotional issue, I think you know
there as a neurodivergent individual
it can be harder to find a good therapist who is going to
come come to you not wanting to fix
you but rather to hear you as as an autistic or as a
nerd virgin individual, but they do exist. There are many good therapists. So
I do recommend talk therapy when possible. I love
occupational therapy.
For me and for my children many of us.
have
Sensory processing challenges or differences they
can look all sorts of different ways.
For example, I'm I have auditory processing disorder so
that the I hear fine, but the way my brain interprets
sound can sometimes be delayed and so I'm
one of those people who's like can you say that again and then halfway through you're repeating
it? I'm like wait. I got it. Now that's auditory processing
disorder. Right? And so many therapies can
be really helpful with that and that's not again fixing me into neurotypicalness,
but helping me, you know Bridge a
skill Gap in in society where it's helpful
to be able to hear people and to be able to respond to them in a
certain amount of time. So, you know
again some occupational therapists are more about making you
look more neurotypical in some of them really get many of
them are nerd Divergent, you know people it is true that
people go into
Those kinds of trading programs often because
they're looking for support themselves. And so you have many autistic therapists
and many Autistic or ADHD OTS. But again,
you have to be careful as a neurodiverant person
kind of screening. I think there are
also fantastic for neurotypical people because many neurotypical people have
You know.
Autism ADHD and many of not all of
the neurodiverses but many of them are a cluster
of traits and when you have enough of those traits that
gives you this autistic label, so it's not about you know,
do you match one two three on the criteria, but rather this cumulative
like how much and how
much does it change how you interact with your daily life? Like
how much does it change how you live and that's
different for something like bipolar disorder than it is for autism,
but for autism specifically a lot
of us neurotypical or not have some of these traits that
comprise the autism spectrum and so
If you are having kind of a skills Gap or you
need support with something, I think therapies can be a great way
to access that regardless of your actual neurotype. What kind
of bring you have? So yeah,
I'm trying to think of other like
I think a lot of people could.
Get value out of sensory support whether that's in occupational
therapist or some other professional many people
are overwhelmed by sensory input in our daily lives
in terms of noise parenting I
get some I mean I work with autistic parents, but even neurotypical Parents
Without autistic children who come through parent coaching
will say they're overwhelmed by the touch
that involves the parenting involves the constant noise
parenting involves and that sense very
overwhelmed right whether you're neurotypical or not. So a lot
of the tactics we use with emotional regulation can be really helpful
for anybody regardless of neurotype.
Wow, that's great. Yeah, that's I mean it's so
it's so fascinating that
our brains are so remarkably individual. It's so cool. It
makes it yeah absolutely and just
just goes to show that how wonderfully unique we
are and the approach to anything, you
know be it no matter I'm a listen nutritionist and I've
written hundreds and hundreds of programs of people. None of
them are the same. Yeah because we're also wildly different with
the kind of most body bodily system. So it's truly is
fascinating and a question question popped
up for me because I don't know much about it and I want to
know but what's the though for those individuals that
don't find an amazing coach like you who's got
the experience and you know, and you you
coming at it from a very very specific and
unique and correct angle I suppose but there'd
be so many so many people that that don't find you and
I was wondering kind of what's the typical root of
diagnosis and therapy for those individuals.
Yeah. So again, I guess I'll just speak from an autistic perspective
instead of trying to cover everybody who's not Divergent because
that's my wheelhouse, but I can
say that.
Many people are caught as children nowadays. We have
better screening processes in place at least in the United States and
I think even better as far
as I understand in Britain the UK
and in Australia are much more
ahead in terms of understanding neurodivergence in
the United States is
and
I lost my train a little bit me one sec. No worries.
You said oh diagnosis. Sorry. I like totally lost what
we were talking about. Okay, so many people are caught as children and then
there are
still many folks who are not caught especially women or identified
female birth people.
People of color and I really do just
mean non-white people of all kinds our unfortunately tend
not to be caught Spanish speakers are not
caught as often as English speakers in the United States and this
is often just because of kind of cultural differences in
terms of how people parent and what people expect from children, but also
just lack of access
to good good medical care
and good intervention at the Young
ages. And so for people like me who are caught older
a lot of it is I've heard many
many parents who have been self who
have self-identify themselves after a child has been identified.
So in my case, my son
started like spinning things very early
in his life had a typical times when
he learned to stand learn to crawl his speech
was delayed. He had a couple of characteristics and I was
like hmm. I think this might be autism and
so, you know, we brought him in we got
Evaluated and the more in that process of
getting him evaluated because the weightless can be years long. I
had read so many books and done so much research and gotten online
and started to talk to people and the
more research I did the more I was like, ah, I
am also autistic and also these other
people in my family who were never caught because it is often a hereditary
to some degree.
So a lot of us then self-identify
when we're adults and then some of us will
go and get a formal diagnosis as well. It sort of depends if it's
going to be helpful for you by the time you've kind of self-identified or
not. So the process looks different
for everybody. Some people kind of go to their General physician
and are able to get a diagnosis. Some people
have go through a huge our process with
my son was we went to through a hospital system and he
was evaluated by there was
a general psych and occupational therapist
a physical therapist a speech therapist a
Child Development specialist. I think a special
education specialist. It was a whole panel of
people and they each did their own evaluation over
a period of a couple of days and then we came
together and got this big results kind of thing. So amazing
it was I was
very happy that they took me seriously because
my son is an atypical presentation of autism.
Some of the traits they sometimes look for are not
present with him, but then other traits are but it
was also sort of a depressing experience. I appreciate
the medical care and it was it was definitely a case of everyone there was
there because they wanted to support and help people
like me and my kiddo but it was also
this idea that they didn't want to find autism because
if they did then he would be autistic forever and it
would it was like a life sentence, right and having autism isn't
like having cancer like it's not a disease and although
some people have co-occurrences with autism that
are very difficult and I don't mean to diminish those or very
challenging the autism itself in
my experience is not usually the thing that is causing.
You know a difficulty with daily life, right? Yeah, some people
have intellectual disabilities. Some people also have down some people
also have you know, it's it's usually a collection of things. So it
was very frustrating where I was like, yes,
he is diagnosed like now we know what to do. Now. We
know you know what the next step should be instead this
group of people at the table were just like, you know,
we're really sorry but he is autistic and I was just like, what are
you sorry for? Like why are you approaching parents and I felt
Happy that I had done enough research and had
worked through it myself individually enough to come to
this point of being like no, this is not a death sentence. This is an okay
thing and I'm happy for this information. But
I just thought of so many other parents going
through that and being told by a group of medical professionals like
we're so sorry. He's autistic and what
that must be like as parents and
how awful that must be and then they feel like they spend
their whole lives feeling like they have to fix their kiddo and doing who knows
how much damage to their family kind of
team Dynamic and to their kiddo. Unfortunately sometimes because they
feel like they have to fix it instead of just supporting but
it's there. So yeah, I I know I've
gone off from your original question, but the diagnosis process looks
really different for a lot of different people. We have self-diagnosis all
the way up to formal team kind of diagnosis and
everywhere in between and whether people
even see when tends to depend on what they're looking to
get from it and what support they need. We thought one because
we need
Speech therapy, and the only way to access speech therapy
under our insurance at the time was to either have an Autism diagnosis or for
him to like have had a stroke. There was no way to access
speech therapy for any other reason which is
a whole other topic in his ridiculous. But, you know,
love kind of luckily for us. He did have autism so
we could access speech therapy, but it wasn't the autism that called the
need for speech therapy. So it was just like this wacky insurance
issue that caused us to I don't
know if I would have pursued diagnosis for him. Honestly if
we didn't need the speech therapy covered under
Insurance because there's not you know for us personally didn't
create a whole lot of value because we already knew so like
what you know, so yeah, you obviously had so much
experience with it anyway, so yeah, that's if that's the
remarkable Insight in regards to that diagnosis process
and how that group of doctors that
do, you know, they those white white coats hold
a lot of power when it comes to when it comes to
that type of a thing and especially
A group of them labeling labeling
the child and then, you know considering that
to be you know, like negative or like really
bad or you know, that's that can that would hold with
the parent for such a long period of time and that would
travel through to the kids that question. Yeah, and how would
you approach an individual
who might you know that you might suspect to be neurodiverse?
Um the same way you approach anybody else I guess
is your question about should
Can you give me more information about yeah, yes how I
think probably I think it's I think it's
probably coming from the because you're talking about, you
know, you you didn't find out about yourself until you're 30. So there
must be still lots of an adults individuals out there that
that are you know, that obviously living totally fine
and normal lives, but there
will be you know, maybe a family member or a
friend is, you know, concerned perhaps about the world
being of an individual and that comes out of a place of compassion. Yeah. And
so yeah, I mean, there's no easy way to
I mean obviously communication and being open and you know,
but doing it in a respectable way
I suppose. Yeah in your experience.
Well, what would you recommend or what would you say?
Yeah, so I thank you for like explicating
that a little bit more. I do work with a lot of late
identified adults. And once you are yourself identified a
lot of times you look back in your family tree and you're
like, oh that for, you know, great uncle John, you know,
he was definitely or oh my sister or oh, you
know, whatever and so this does happen a lot and I
think from me it comes down to
well many of us when we're identified have
this sort of
process of grief for not being identified earlier and
going through life kind of without this information that could have really
supported us. But also this overwhelming Joy at
being like, ah, I'm not the weird person. I belong to this
whole other group of people who are just like me and especially
as an autistic, once you start to meet other autistic people.
It's like it's like finding the country you
were born in it's just like suddenly feeling like you're part of
the group after not really managing that for most
of your life and you want to share that with other people in your
in your group in your family who you feel like might be autistic, but
for me what it comes down to is it
gonna serve that person to have this label or not and
it really depends and so
especially for older adults and
even for people my age the word autistic is
still a negative label and it's not
something they want to have which can be hard to wrap your
brain around when you've been excited to receive this label
after many years of struggle in
cases, but
it is challenging for certain kinds of
people to.
Kind of think of themselves that way and want to
think of themselves that way and so what can work better is
to really approach it from the ground up and instead of being like hey, have
you considered getting diagnosed because I think you have these traits
and sort of coming in with a label and kind
of pathologizing but until recently they
thought was just normal about themselves to come at it from the
other direction and say, you know, I noticed that
sometimes you seem like this is hard for you. Is there
anyway I can support you in that right and really to instead
of saying, you know top down I'm gonna put a label on you
because you're autistic. We're going to give you these supports and said
to just come from the assumption that everybody deserves accommodations regardless
of their neurotype this includes neurotypicals. If
something is hard for you, then you deserve support in
that hard thing and if your family
member is struggling with something and
you know trying to offer them support and trying
to be open and saying I'm seeing this, you know can is it
have you thought about is there a way we can help you with this right or
make this easier for you and then over
time you can open some conversations and if they start to seem
like they're open to researching on their own and looking at
it on their own then you can bring up the label if you
want to if you think it's helpful, but often and
I
You know, I like the label because I do
I do think it offers a sense of community to many people
and I do think there's a lot of work to be done in destigmatizing some
of these labels like ADHD autism schizophrenic Bible.
Like these are all labels that especially neurotypical people
tend to hear and go. Oh that's that's I'm sorry to hear
that. Right, which is not always something we need to do but because
there is a stigma attached to them. It's it's reasonable
to assume that other folks might also feel
stigmatized by being labeled by you as unfortunate
as as that is and instead
to come from this accommodations Palace of you know,
I notice that you get really upset when you have to
deal with this thing, like what if we traded chores or
I noticed that you know, the light really
bothers you at a certain time of day. What if we got you sunglasses for
that or whatever it is, you know, there's a wide variety of accommodations.
And you know often if people want a label they'll
if once they start once you start them on the
accommodations perspective, then they might go Google it or
they might go talk to their therapist or they might go whatever and then
come to you and ask for support and if somebody asks you like hey,
I know you're autistic. Can you point me to resources that's great
give them to them but coming to people who are really in
that mind space of being ready to to think
about themselves that way and just dumping stuff on them is
not really kind or polite or supportive. It's
more about us wanting to share our thing,
but that's not about them and we have to work from them first that
you know, so I hope that's helpful. Yeah because
of a good place but yeah, so it's
so unbelievably tricky and obviously you have to know that
relationship and yeah, I think coming at it from the
perspective as is is what I'm about to express
for the individual or is it about
me I think that's it. That's an important standpoint.
And you say that you I think what you said about finding your
community, you know after your diagnosis when you're in your
thirties, you find your community. Did you feel like an outside of before
that before you knew anything about it? Oh, yes.
Yeah, I am.
I and I've heard this from other people too. So I don't think it's just me
but many of us get our our label of whatever it
is and and you sort of reinterpret your
whole past and you're like, oh that time
I was unbelievably awkward in high school like that
was, you know, a social deficiency quote unquote or
oh all those times. I didn't know how to
respond or
You know, I didn't realize this person meant this thing until hours later.
That's a processing delay. And these things
are normal and common in my group. Right? So
instead of it being me who can't
do things and taking that burden on myself as a personal
fault or a set of personal false instead. It's
like no these are actually totally normal things in
this group of people. It's just I didn't know I was part of that group of people
right? So I think
that
it really
Kind of blue kind of blew my mind open it. I can't
think of a better way to say it. It really changed how I
approached my own life and changed
which things are quote unquote my
fault and
Instead. It's like oh these things are.
Me just being bad at life. These things are just autistic traits
and reframing that whole narrative for myself and
saying you are doing the best you can you communicate differently
than other people you move differently than other people
your brain literally Works differently than other people and I have a
lot of strengths other people don't have but also a
lot of weaknesses because we're all mixed a mix of those things and that's again
normal but in neurotypical social
life, I was just a set of
weaknesses like constantly and being able
to say Oh, no, you're not just a bunch of
weak traits. You you have all these strengths that you just sort
of putting emphasis on because they're not valued by this group
this neurotypical group the way they're valued and autistic Society
was really yeah just mind
blowing and and really shifted my perspective of myself
and that's something I try to do for clients too because a
lot of times you get this diagnosis late in life and people have been
Not on purpose, but for a long time kind
of putting you down for not communicating.
The way they expect you to for not meeting
their expectations basically because you're not a neurotypical but we
thought you were neurotypical. So why can't you mean irritable expectations? Right? And
the minute you have this? No, I'm actually ADHD. I'm
actually autistic you can say well those expectations aren't for me
different neurotypicals. I'm autistic. So all I
have to do is meet autistic expectations which are
different and and tend to match us better. Right and
now I can communicate to neurotypicals and say hey I noticing
these expectations. I can't meet them and
that's not my fault. But that's just how it's gonna be. So, how can we collaborate to
me in the middle? Right which is a speech pattern
or a script that I didn't have before because I
I thought I was just supposed to be able to do it. Right so it was always about
me and instead of about let's let's meet together. So yeah,
I think I think a lot of people struggle in
their lives when they don't this is this is this is for
most people when they don't find their Community or
their little clicks, you know, like and
I think back to being at school and I think I feel
I don't think I was really an individual at school. I feel like I was
just trying to fit in and survive and just
you know know where the right things that I thought
everyone else would wear, you know, like we do those things and they're so
unbelievably like not unique to you as a natural person. So you
grow up they do this huge part of your whole life not actually
knowing who you are and what it is that you like and expressing
that
And then for a lot of individuals who don't find.
The community whether it's whether it's like sports teams or
whether it's like a religious Circle or whatever. It might
be. Once you find your in those individuals
that have very similar interests and similar passions to to you.
You can start being a bit more comfortable in
your own skin, I think and I think that what you're
talking about in regards to finding your community after you
know, 30 plus years of
not quite having your tribe.
How wonderful and uplifting that that must have
been for you and you say you're taking that you you took that whole experience to
be like a really positive.
Wonderful transformation. It sounds like
statement
I think a lot of us especially as we're
youth in adolescence and trying to figure out what life is and
what we even want and what we're doing a lot of us are
struggling to meet expectations that are sort of just floating
out there in the world. How you dress how you act how you
speak? Right how you communicate with other people? I
think it's sort of true for
everybody and then kind of almost another tier or even more
intense for neurodivergent people and the
best sort of analogy. I've seen
other people used to say it is go, you know
trying to be normal in another country where you just don't understand the Norms
right and you're gonna have more trouble it's not
like you can't do it. It's not like it's impossible. It's not like everybody else isn't struggling
too, but it's just this extra layer of difficulty.
So that's one piece. I wanted
to say and then it was really uplifting for
me and really supportive for me. But also there's this and
I mentioned this before there's this other side of it, which is
this grief of having spent, you know,
My entire young adulthood and and childhood
feeling like I was a wrong person right like
that. I wasn't working. Right and I've
heard that echoed with many of my clients that
many of us are identified in our 2030s
many of us are identified as children. But many of us I have
multiple clients were an identified till they're six years or
70s and at that point it's like this never too late like, you know,
you can still make a lot
of changes but it's also like that's 60 years
of feeling like you don't fit in or don't belong or like you're
in this country where no one speaks your language and that's
why
you know, I really
Want to Advocate that's part of why I do the work I
do is because if we can get more people identified earlier
and kind of finding their people earlier. That's
how many more happier healthier. Well,
you know people in the world then you
know, there would have been and how much less
trauma that people have to experience for, you know
forcing ourselves to fit in in a way that's not
supportive to us for 30 years. And so
many of us have to unlearn stuff that we picked up that's not it
is similar similar to trauma. It's not
exactly the same but you know nerd Divergent trauma is
a thing where we have learned to kind of
hide ourselves and subvert ourselves in order to fit into
a mainstream. And once we have a label
we can be we can start to uncover that and dig that out and say, oh, I
don't actually have to you know not wave my hands in public.
No one's judging me right or that's that's a really kind of
Obvious example, but it's the best way to have
right but there are layers of things that we have suppressed as Autistic or
nerd hydrogen people that then we finally feel comfortable
digging out but to dig that out in your 60s or 70s. There's
a lot of grief associated with that, you know and even in my
30s, so yes this very binary. It was
very liberating and also very tough and
hard and sad and you know, it's it's a
complex. It's a complex. I think that happens save
a complex and I really appreciate you sharing that with me because that is
yeah. It's something like, you know, a lot of people just
wouldn't understand.
And be very very difficult for them to even put put themselves
in your position to even begin to understand it.
And I totally agree with you in regards to the extra layer
of complexity when it comes to
Trying to find find your community within within that
Circle. Yeah, I absolutely understand and when it
comes to collaborative problem solving, can you
tell us a little bit more about like what that is?
You certainly covered a little a little bit I think of it, but can
you tell us what it is and how comparents use it to start improving
their whole families well-being. Oh sure.
So this
Under my wheelhouse as a parent coach and I work with mixed neurotype
families which just means families where some folks are
neurodivergent and some folks are neurotypical or there's a mix
of different brains and this again
gets back to this idea that often.
We have expectations about how things should go and those
expectations might not actually be founded in reality. There's often
pulled especially with parenting from our own parents. How did
our parents do it? What did they expect from their kids? And so okay. I
should expect the same from my kids, but kids are people for
first and foremost and so with collaborative
parenting collaborative problem solving what we do is we
treat everybody who's having the problem as a
person first and foremost with basic human rights and
we work from there and we try to figure out what
are some ways that we can both adjust our expectations
to meet in the middle and collaborative problem
solving is used in many offices in many
workplaces and whatever but it works really well with parenting neurodiverging
kids because often neurodiverse kids have extra
sensitivities sensory processing challenges.
Processing delays, whether they're auditory processing
delays, like I was describing before or cognitive. So sometimes
it takes us a little longer to get through
a decision than a neurotypical person or there's
more things. We have to consider in terms of our comfort and our
safety our feelings safe in a situation. So collaborative parenting
is about assuming that
your child is doing the best assuming that any kind of
struggle or push back you're seeing is not personal to
you as a parent but is rather about the child struggling.
And kind of stopping what you're doing slowing down and really
working out. How can we fix this problem to both of our mutual benefit
and it's a process of parenting
that initially takes a really long time where every
time you have a problem you are stopping what you're doing and just
really digging down into what the issue is. But
then over time you both get better at it as parents and children
and you solve things fast and everybody's happy and it's real nice.
So an example I often use
I have some I do trainings on this I have resources on
my website and I'm happy to email like help
folks over email, but the the most basic example, I
usually use is that my daughter when she was very young
would have three hour Tantrums over
putting on shoes to get out of the house because of
sensory overwhelm where she didn't like the way the shoes felt
because of what's called demand
avoidance, which is a horrible term, but basically means that
there are some children who don't like being told
what to do because it interferes with their kind of
health
I what's the word?
Their ability to feel like their own person, right?
So they want to choose and that can be very common in
narrative urgent kiddos who are already
a little bit rigid and already like things the way
we like them and I'm speaking for myself here too. So we
would have these three-hour Tantrums over shoes and eventually what
the only thing that worked was every time sitting down
waiting for her to calm and then once we
were both calm really talking it out and saying well, what is
it about the shoes? Is there another way we can do this dropping all
of my expectations that we put on shoes to go the grocery store and
saying well what what else can we do in this situation that solves both
our needs right? I need your feet to be protected. She needs
to be comfortable.
And so how do we meet and sometimes it was different
every time sometimes it was like, oh well where she was on one foot but not
the other one.
It's better than nothing. Sometimes it's like oh, well, we're double socks. Sometimes
it's like for this one outing. You don't actually need shoes. We
figured this out. You know, what if we put our shoes on when
we got to the store instead of right now in the house and you
know, this is a small example, but if
you what happens is over time, you're showing
your child that you respect them as an individual that you will hear
their side of the story that you are on the team with them and will
support them and then they're on your team too. Right? So if
I get overwhelmed and I need a minute I can just say at this point
in my life. I am overwhelmed. I need to go in
my room for three minutes and they'll be like, okay mom's taking a break,
right? So there's this Mutual support that happens and mutual trust
that happens on both sides, which is really important with
narrative urgent kids because again as a parent, I don't want my kiddos
to have to suppress themselves the way that I was, you
know suppressed by well meeting people when I
was a kid and so really focusing on their needs
and their ability to learn to articulate their needs to
say what they need to set boundaries.
Themselves in their bodies. These are all kind of really important parenting goals
and collaborative parenting kind of encompasses all of those very neatly in
a way that has been really supportive of my family personally,
but also a lot of other families that I work with so
Yeah, I think that type of problem solving would benefit
so many different relationships and so
many works everywhere. Yeah. Yeah that question
because we have as again it's like
It is is us going
to the store about me. Is it like you know, or can I
actually meet meet my child where they're at? You know, like I think
especially I've got two year. I've got two year old and a
10 month year old and especially the two year old. He's soon. Yeah,
and it's called you
you're constantly having to problem solve. Yes and
collaborate and I know when things are a bit too much
for me and I might get a little bit.
Might get a bit anxious or might get a little bit angry or rageful
in the moment. I know that I know that that
that's never what 100% of the
time it's never helpful. We're never benefits the situation. But when when
I
Do find do you find it within myself to no sit
and communicate? And yeah, you say like meet the
child where they're at and take their understanding and
their feelings and what they may want to do and how
they're feeling into consideration.
It's so beneficial and it spans out
throughout the relationship. It's not just about it's not just about that moment
about that situation. It's about the whole relationship
building with within the family. And as
you say if everybody can kind of get on board with that type of approach the
children can start to
Learn how to do those things with with the adults because you know,
we obviously get overwhelmed as well. We don't always want to put our shoes on. No we
do not.
So I find an interesting.
Sorry, I didn't mean to direct you. No, that's when I was I just I find
that very very interesting especially having you know, yeah young young
children who are literally learning how to be human beings
in a very complex remarkable way
in the neurochemistry that they have and the the ability that
they have to think and feel and behave. It's quite remarkable
and overwhelming for anybody. So we have
to we have to run
Use compassion and understanding and patience
and time to be able to improve improve those
relationships and you know develop help develop these individuals as
individuals rather than attempting to
control them and sculpt them into what we think
that they should be. Yeah, that's exactly my perspective you
that are the nose and I think collaborative parenting
anyway is about this kind of democratic approach
of you know, taking everyone in your family
and putting you on the same because you have more experience as a parent right
like, you know, what a red traffic light means and you know what it means in a car
is coming and so there are ways that you have more information than your
children and experience but in terms of our actual human-ness we
are on the same page, right we are so we
want to
And my my opinion is that if we
uphold sort of this Democratic idea of everybody
having their own rights, everybody being supported in the
world that accommodations perspective. I was talking about before of
just making it easier for everybody that Democratic
parenting is a good way to do that too to really interrogate
whether their needs how do we meet them and that as
you say builds up it takes a long time in the beginning but it
gets faster because eventually everyone trusts each other
and you know, you can assume you can start to
assume. Oh my kid isn't just bugging me to bug me right or oh my
dad isn't angry because he hates me it's
because you know you start and you talk about stuff like
emotional regulation right you talk about how do I take a deep
breath? How do I calm down and you can use vocab you
can build vocabulary together and say, you know, I'm feeling
very stressed out right now and I need a minute I did
that. I was at the pool with my kids yesterday and one of them asked
me to fix their goggles and I hate I can't handle Vegeta little
I get really angry real fast.
It's not a thing. I'm proud of but I tried for like a minute
and I was like child. I'm really sorry. I'm going
to throw these I'm gonna have a tantrum. Can you bring them to your dad and
I'm gonna take two minutes and she was like, okay cuz she like she
know it wasn't about her the goggles. It was just I can't handle 50 things.
Right? We've built that up over a period of time. Whereas when I
was a kid despite having really excellent parents, especially for the time period
if a parent got angry in their same
room I was in it was like, oh gosh like I have done
something right? So I think parenting Norms
have really shifted and that this is a great way to kind of shift with them and
really enable kids to
Be brave and be themselves and be able
to to say, you know.
You know, my kids will often say Hey,
you know, I I feel like you're overwhelmed you
want to take a break my co-parent the other day was telling
me that he was playing a game with my son and he was fidgeting on
a Rubik's Cube while he was playing the game and my son got annoyed
with him and said do you think we could put that down just until the game is
done my son's nine and he told his dad to like put
the Rubik's Cube away and I was like setting boundaries advocating
for one's needs like that's amazing, you know, and I
would give that to collaborative parenting I think like
that's what it does. It allows kids to step boundaries and
be sure of themselves when they ask what they need. No, I was real proud.
Yeah, that's amazing Bravo for that
because that's obviously a lot of work goes into that and your child
understanding the power of the power of their words and the power
of the parents to understand them
and respect them and knowing that if they ask them
in their very particular way, then they will be hurt. They will be listening
to yeah.
That's important. I think it really if you
want the Next Generation to you know,
it's a parenting kind of phrases. You
just want to do a little better than your parents did for you. And for
me. This is the way this is the way to do it and you know, I didn't
learn how to advocate for myself. I didn't learn how to tell
people no until way too late in my life. And I'm like no I
want my seven-year-old daughter to be able to say no right now, you know if
she needs to if she needs to set a boundary, so yeah
just to finish up. I love to see
if you go if you go any takeaways for neurotypical people
to maybe increase their understanding and compassion towards
people who
Towards neurodiversity neurodiverse people
because I think well, first of all, I don't think a lot of neurotypical
people even understand that these individuals.
Are there and they are absolutely no
but you know, I just thinking about like in my
life experience. I think a lot of people just expect everyone
else that they see out in the street to you know know the
rules of the game or whatever it be like
them to be typical. So and I think
I think there's so many people will have
people in their circles in their relationships at work or whatever
that there would be that obviously a different.
And I just wonder if there's something
that you a takeaway you can think
of that might help those individuals think a
little bit differently about their expectations of everyone.
Sure. So, yeah, 10 to 13 percent of
people worldwide are in order Divergent. So, you
know somebody you probably know multiple somebody's who
are you know, some kind and many
of us it does sort of
double up so many of us are
more than one kind of narrative origin, but you definitely know
somebody there's probably someone in your family. There's somebody at work. There's somebody in
your kid's school class, you know, probably more
than one somebody and I think
the best thing I can say is to just try and
I know this doesn't fit with the World At Large in
many ways. But unless you have good evidence
to the contrary try to assume that folks are doing their best and if
somebody is a you know
slower than you would like if somebody asks you a million questions
before they under you know
seem like they understand what they need if whatever you're
seeing that's causing you frustration. If you
can just take a breath and assume that they are
asking you because they need the help or they're slow because they need
the time and working from there. Right and sometimes
just asking if you're seeing an issue
or if you're perceiving an issue saying, is there anything
I can do to make this easier because a lot
Of us are used to just sort of sucking it up and pushing forward because when
we ask and this is getting better, but many
of us when we've asked in the past have been shut down
real hard and so we don't ask anymore because we might get fired or
we might get you know, some kind of negative consequence. But
if you ask us like hey, is there a
way I could you know set up this process process at
the office to make it easier for you. Do you want more meetings
less meetings, you know, are you
is the place you're working a comfortable place for you to
work whatever you can do in whatever way you
can ask us what we need.
We know and we will try to we would love to
be working better. You know, we want to support
the world just as much as you do and
then the other thing I'll just say
is you have regardless of
the neurotype you have advocacy organizations
in your community. So there are
chapters of autistic lit organizations.
All over the country adhd-led organizations bipolar-led organizations.
So if you can if you're interested in learning more about
any specific neurodivergence find the
organizations that are led by the people who have that narrative evidence,
right? One of the big pushbacks against
places like Autism Speaks is that they're run by neurotypical people.
And so that whole issue of even when
people are doing their best, they're still maybe promoting stuff that actually
autistic people don't want promoted or isn't helpful
to us. So if you can find the organizations that are run by the
folks who are you know, with that neurotype, you
will get better information. You will get better resources to
actually improve our lives and and improve our
well-being and that is
the best advice I can give everybody I think.
I hope it's helpful. Fantastic. I
think that's really really helpful. And I really appreciate that very wonderful
inside that you have there. Can you let us
know how we can connect with you just for my audience? Oh sure.
Thanks. So I'm I host the neurodiverging podcast
which comes out about twice a month and you can find that
on any streaming service. I'm also at neurodiverging.com where
I have a Blog with lots of Articles links
to the podcast and my coaching services. So
if you are in need of a parent coach or a
neurodiversity coach or even if you are just looking for resources, if
something I said was like, oh, I really want to find
autisticled resources in my community and I can't find
it Google if you email me I will help you. I will
not tell you stuff because I think it's important to get that information out
there. So
Amazing. Well, I'll make sure that that information is
in the show notes, but thank you so much again for joining us
Daniel. I really appreciate your Insight and time. Thank you
so much for having me. I
really of the opportun
Ity, of course, well, thanks for listening everybody for more information
about anything we've spoken about in this episode. I will make sure I
will leave notes in the show notes. Don't forget to
subscribe if you haven't yet. Thank you so much for listening to
True. Hope Carl see official podcast of true hope Canada. We're gonna
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